together we can prove #IgnoranceIsNoExcuse
HEDS Up! 1
the online EDShsd magazine
1
don't forget our...
The Stripey Sisterhood
MUST
take extra care during certain times of the month, as hormones can make hypermobility worse and increase the risk of injury.
If you didn't know how these changes are
hormonally yours, now's the time to learn...
#StripeySisterhood
Doing Ourselves A Disservice?
Getting good healthcare is hard enough for people with lesser-known illnesses.
By using the work 'rare', we're doing
ourselves a disservice and making things even more difficult for ourselves.
#DoingaDisservice
Music v Pain
(v0.1)
It's well known that EDShsd
cause agony, and that medications do not work so well in our bodies.
When it comes to the war on pain,
music may be one of your best weapons.
#MusicvPain
This is...Ehlers-Danlos (EDS) and HSD.
The first in our 'This is...' series is about more than medical facts, including what EDS is, how you say it, along with the psychological and social issues faced by people
with these connective tissue disorders...
...Especially
when it comes to dealing with the Medical Profession.
#ThisIsEDShsd
Gestures may come with good intent, but unless you really listen to us there will come a point when help becomes hindrance...
#HelpNotHindrance
The Dis-Abled Able
Able bodied
people can struggle emotionally to accept our needs - but we are also guilty of stigmatising those within our own Tribes.
#TheDisabledAble
Pressing Matters
Even in this internet world, it can be nerve-wracking to approach and deal with journalists.
Read some tips on how to
press matters
and help raise awareness.
#PressingMatters
other editions
Got something you just want to get out?
Send your thoughts to words@thetribediaries.org
with the subject [My Entry] and we'll do our best
to turn it into a page on new website, thetribediaries.org.
You get to okay the page before it's public.
We're still
rebuilding our site
But we've still got some features for you to read in three editions of our online magazine HEDS Up!
There is also The Spotlight, where you'll find
subjects deserving a bit more attention.
We're currently researching and gathering material
for HEDS Up! #4 - our Ableism Edition.
Keeps you eyes on The Spotlight and our
Facebook page for updates on that.
