HEDS Up!

A group of people in discussion around a table. The words 'Pressing Matter' written on the image.
The Ehlers-Danlos/HSD community is acutely aware of Joe Public's lack of awareness - and we've never needed...
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Top of a smooth, spiky plant and picture frame. The words ;When Help Becomes Hindrance' written on the image.
Wanting to help is admirable but when exactly does your aid become more of a hindrance?
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A doctor's white collar an stethoscope around his neck. The words 'Doing ourselves A Disservice?' written on the image.
How we can improve our healthcare by dropping the word 'rare'.  Most people with EDS/HSD have told medical...
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Young woman wearing turquoise headphones in front of an orange door.  The words 'Hormonally Yours' written on the image.
Loads of women with EDS/HSD report worse symptoms during their monthly cycle, but not everyone realises...
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Close up of a record turntable. The words 'Music v Pain' written on the image.
Pain is a massive part of many Invisible Illnesses like EDS/HSD. It can be impossible to manage in bendy...
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View of a meadow sunset through wheelchair spokes. The words 'The Disabled Able' written on the image.
When it comes to using a wheelchair, things are often more complex than you think...
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