Admitting to yourself that you need a wheelchair isn’t easy. When when you do, your very fabric as an individual can begin to unravel.
Most of us with Invisible Illnesses including Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders (EDS/HSD) have struggled desperately to get medics, friends and even family to understand and appreciate our problems and pains.
Got something you just want to get out?
Send your thoughts to words@thetribediaries.org
with the subject [My Entry] and we'll do our best
to turn it into a page on new website, thetribediaries.org.
You get to okay the page before it's public.
But we've still got some features for you to read in three editions of our online magazine HEDS Up!
There is also The Spotlight, where you'll find
subjects deserving a bit more attention.
We're currently researching and gathering material
for HEDS Up! #4 - our Ableism Edition.
Keeps you eyes on The Spotlight and our
Facebook page for updates on that.
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