It’s worth noting that although Pubis Symphasis Dysfunction
is common in pregnancy and women without
EDS/HSD have it, the chances of it happening in Bendy Bodies is higher.
Some of the Stripey Sisterhood can expect pelvic problems from four months in to their pregnancy, so be sure to make our medical team aware of this if a baby is in your future - and get crutches and/or a wheelchair in advance of when you actually need it, as it takes time to arrange these things and for them to arrive.
They found that the level of Relaxin in women with BJHS/EDS/HSD* who had flat feet (pes planus) and/or a forward curvature of the spine (think ‘hunchback’, hyperkyphosis) has significantly higher levels of this hormone in their system – when they are not pregnant.
While they also say this doesn’t mean it causes the Syndrome, it certainly highlights the role hormones have to play in our bodies. What this means for the future of female EDS/HSD patients, we don’t know, but any increase in information can only be helpful in the long run.
We’ll keep an eye on research in this area, and report to you when we find something new. In the meantime, keep your eyes on the site for a fascinating article about hormones and pain.
It might just change provide some alternatives for pain patients in the future - if it checks out...
*As explained in our feature
Doing Ourselves A Disservice? top EDS experts state that Benign Joint Hypermobility Syndrome/Joint Hypermobility Syndrome (B/JHS) is Ehlers-Danlos, and the term B/JHS will one day be dropped from use. Regarding the new Diagnostic Criteria (March 2017), it is stated that HSD are essentially the same as EDS - no better, no worse.)